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From street to stage: Musicians with visual impairment promote their talent

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By DANIEL ABUNALES

RAY Charles, Stevie Wonder, Andrea Bocelli: world-renowned artists with visual impairments yet with exceptional musical talents. They’ve had countless performances before admiring fans.

Unfortunately in the Philippines, visually impaired talents are often relegated to street sidewalks or found performing under a bridge, a donation box close by. Stationed in crowded areas, they are largely ignored by passersby.

But Tuesday last week, musical talents with visual impairments took center stage, literally, at the first Himig Tanglaw at the Sky Dome of SM North Edsa.

Coming from around Luzon – Pangasinan, Nueva Ecija, Bulacan, Cavite and Metro Manila, they performed to a crowd of not less than a thousand.

Himig Tanglaw is the culminating activity of the observance of the White Cane Safety Day, created under Republic Act 6759 or the White Cane Act.

The law is meant “to instill public awareness of the plight of blind people”, and to promote their well-being.

Eleven performers for the solo category, and four groups for the battle of the band competed for the first Himig Tanglaw title.

Himig Tanglaw lead organizer and president of the Philippine Chamber of Massage Industry of Visually Impaired Inc. (PCMIVI) Ronnel Del Rio said the response from the blind community was overwhelming.

Kasi matagal na nilang gusto na may bagong platform. Nawawala kasi ang bulag sa music industry. Although may mga natitira pang iilan but we want to restore them to the music industry (They’ve been wanting to perform. There are no more blind musicians. There are some left and we want to get them back.),” added Del Rio.

Since Willy Garte, no one from the blind community has penetrated the mainstream music industry again. The singer-composer died in an accident more than a decade ago.

Bernadette Navarro, vocalist of the Call Foundation of the Blind band, said that events like Himig Tanglaw could boost the morale of visually impaired people who are musically gifted.

Na-inspire nga ako nito kasi kaya naman talaga ng visually impaired na makipagsabayan (I’m inspired because musicians who are visually impaired are really capable of doing this),” she said.

Prodex Tipano, leader and drummer of the Sharp Troopers band, said that providing a venue for people with visual impairment to showcase their musical prowess breaks the stereotype.

Binigyan kami ng pagkakataon na maipakita o maipamalas yung talent namin bukod sa massage (We are given a chance to showcase our talents apart from doing massage).”

Tipano’s bandmate, Charina Limpiado, however, said that not seeing the crowd’s reaction is one of the greatest challenges of a blind performer.

Hindi kami nakakakita. Hindi namin alam kung nasisiyahan po ba sila or hindi po (We cannot see them so we don’t know if they like our performance or not),” said Limpiado.

To deal with this challenge, she gives her best in every performance.

Charmaine Tonic, who has been singing since she was seven, and joining competition since she was 14, said music made her comfortable about herself.

Now 21, Tonic said that the crowd’s reaction amazed her. “Nagulat ako na na-appreciate nila first note pa lang hanggang matapos ko yung kanta (I was surprised that they liked my performance),” she added.

Del Rio said he’s planning to do the activity in several provinces next year.

Winners of the Himig Tanglaw will be part of a road show that will include an open forum that aims to educate the public on visual impairment.


An ambassador for light and music in a world gone dark

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Text, photos and video by JHESSET THRINA ENANO

IN contrast to the busy urban scene outside, the halls of St. Paul University in Manila are quiet on a Saturday afternoon. At its College of Music and the Performing Arts, however, voices resonate through the corridors, singing to the accompaniment of a piano.

The maestro on the piano is Anderson Go. As his fingers skim deftly over the ebony and ivory keys, he listens intently to the trio of male voices that fill the room. During Saturday rehearsals with his chorale, Go makes sure every note is hit perfectly. Otherwise, his fingers stop playing.

“Can we repeat that?” he says as he corrects the singers: a flat note here, a high pitch there.

To people listening from outside, the chorale seems only common in the college. But a closer look shows that the performers are extraordinary: All of them are visually impaired and have been brought together by a passion for music.

Go leads this team. Now 46, he was born with congenital glaucoma, a progressive ailment that increases pressure in the eyes because of fluid build-up. Despite several eye operations, he completely lost his sight at 14 years old.

Two years after, he began his formal training in music. Little did he know that nearly two decades later, he would not only be playing for himself, but for a bigger purpose.

In September 2000, Go formed the Ambassadors of Light, a group of musically talented children and young adults, aimed to provide formal musical training, educational scholarship and assistance to its visually impaired beneficiaries. The initiative opened a new path to young visually impaired but musically talented Filipinos like him.

Go himself had struggled to pursue his own passion for music after he could no longer see. The adjustment for the young Anderson, who used to be active in sports, did not come easy. Unlike the basketball and the bicycle, letting go of the piano keys was out of question.

“Before, I can still see the keyboard, the keys of the piano,” he said. “When I became totally blind, I really needed to know the touch and feel of the keys, the distance of one note to the next.”

In his musically inclined family, Go and his three siblings had taken formal piano lessons when they were young. In the end, however, he was the only one who pursued music as a career. Pushing the boundaries further, he began formal classical voice training at 17 years old.

Three decades of studying music has made Go’s ears attuned to even the slightest mistakes in singing or playing, and even the most minimal of noises. During rehearsal, he politely requests parents to avoid going out the door, as he hears it swing open and close.

Like many young visually impaired Filipinos, Go attended the Philippine National School for the Blind (PNSB) in his early schooling years, where he further studied Braille. Without an exclusive college yet for blind students in the country, he decided to enroll in the Philippine Women’s University (PWU), studying double degrees in classical piano and classical voice.

It took him nine years to finish both programs, becoming the first visually impaired graduate of the university.

“Joining a regular class for us is not easy,” he said, noting that all blind students from PNSB enroll in regular universities after. “You have to adjust, cope with the lessons as fast as you can. That was the most challenging, yet interesting part of the experience.”

Upon graduation, Go taught voice classes in PWU for six years and also worked in St. Paul University. Recently, he was given the opportunity to teach at the College of Music of the University of the Philippines Diliman.

He originally wanted to be a performer, but life took him in a different direction: He became an educator.

“I enjoy teaching when I see my students are learning and improving, and that is now my greatest achievement,” he said. “If they have other skills that I do not, it’s good for me. They can go farther than what I have achieved.”

  • Anderson Go, 46, is the founder and musical director of Ambassadors of Light, a group of visually impaired children and young adults who receive formal musical training under his tutelage. The group provides educational scholarships for visually impaired Filipinos.
  • When 14-year-old Anderson Go lost his sight due to congenital glaucoma, he had to know particular details in playing the piano, such as the distance from one musical note to another.
  • The Ambassadors of Light, led by founder and musical director Anderson Go, has eight members. They include (standing from left) Julius Contrata, 32, Eduardo del Rosario Jr, 31, and Brian Vega, 25.
  • Anderson Go requires assistance in getting around universities and other places for performances and other activities. His driver, Alex, has been his companion for years now.

As the founder and musical director of the Ambassadors of Light (AOL), Go gathers scholarship funds through the help of donors and supporters. The beneficiaries should be enrolled in a music degree in college.

Financial assistance also comes from those who witness the students’ singing and dancing talents during the group’s performances. Their members have performed major concerts locally, even represented the Philippines in music festivals abroad such as in Taiwan and Japan.

For Go, the decision to call the group “ambassadors of light” is based on his own experience of finding guidance through God’s “heavenly light” whom he calls his personal ambassador.

He said he hopes the group would bring light to others who also have visual impairment, especially those who think losing their sight means the end of their world.

“I want to show them that no, this is just the start of a new path in your life,” he said. “As you go through (your) journey, this group will be your light.”

This Saturday, only three of eight members show up for rehearsal owing to schedule conflicts. Julius Contrata, 32, was one of the first scholars of AOL; he took a special course in voice in PWU from 2000 to 2005. He now works as a licensed masseur therapist at the Visually Impaired Brothers for Excellent Services, but still performs with AOL.

Contrata describes Go as a strict teacher. “He picks apart every detail, from the right breathing technique to the proper vocal release,” he said. “But if we have a personal problem, he is not just our teacher. He is also like our kuya (brother).”

Since its inception, AOL’s long-term goal is to put up its own music school to also give employment to its scholars.

But financial and logistical problems hinder the fulfillment of this dream. In addition, AOL needs a good and accessible location for students with visual impairment. At present, St. Paul University lends the group a room to rehearse.

Access to quality education and equal opportunity for employment are mandated by the Magna Carta for Persons with Disabilities, or Republic Act No. 7277. With the thrust for inclusive education, more efforts are directed toward mainstreaming students with special needs in regular schools. However, the lack of accessibility and reasonable accommodation makes it difficult for persons with disabilities to participate on an equal basis with those without disabilities.

Go said the country still lacks materials to teach music to people who have low vision or are blind. Braille music books are hard to come by in the Philippines, compared to other countries such as the United States.

“If there is a song or piece that I want to teach to my students, I have to ask for somebody to read the notes for me, or record the whole piece,” he said. “I study it through listening, and only then can I teach it. It takes a longer time that way.”

Even in UP, the country’s lone national university, resources for visually impaired students are limited. Despite the opening of a music theory class for visually impaired students last school year in the College of Music in UP Diliman, the lack of resources forces Go and another blind teacher to use their own materials to teach Braille music notation to students.

As an educator with disability in the Philippines, Go said there are still a lot of challenges. Apart from physical barriers, the Filipino attitude toward disability is a work in progress.

“They think we (persons with disabilities) are pitiful. This is something that society should overcome,” he said, adding that there is still a huge need for facilities and resources for persons with disabilities like him.

As he continues to work for a bigger goal, Go feels happy where his passion has taken him and his students.

“Through music, we can show the people, the world, what we can do,” he said. “Through music, we can let them see that we can.”

Ambassadors of Light Script

(The author recently graduated with a journalism degree from the University of the Philippines-Diliman. She submitted this story for the journalism seminar class “Reporting on Persons with Disabilities” under VERA Files trustee Yvonne T. Chua.)

PDAOs in Metro Manila: Navotas

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Text and photos by MARIA FEONA IMPERIAL

DUE to accessibility issues, persons with disabilities (PWDs) in Navotas City are not expected or even encouraged to show up in the city social welfare department (CSWD). Instead, PWDs are told to send their relatives to represent them.

This is because the CSWD, which accommodates PWD concerns, occupies a room on the second floor of the city health office. The building has neither ramps nor other accessible features.

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According to focal person Leandro Serrano Jr., their temporary solution is home visitation, during which they deliver assistive devices such as crutches and wheelchairs.

The PWD affairs unit is manned only by two employees including Serrano.

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Navotas City has a total of 1,510 registered PWDs. Eight out of 14 barangays have local PWD leaders, and six of them have organizations that are registered with the Securities and Exchange Commission.

Serrano said it was only in 2015 that the PWD affairs was allotted a separate P500,000 budget under the Internal Revenue Allotment.

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Previously, they had only been drawing their expenses from the city’s gender and development fund. Serrano said the 2016 budget for PWD affairs is estimated at P1 million.

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The city government is eyeing the creation of a Persons with Disability Affairs Office (PDAO) at the plaza.

PDAOs in Metro Manila: Quezon City

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Text and photos by MARIA FEONA IMPERIAL

QUEZON City is among only a few Metro Manila local government units that have a dedicated Persons with Disability Affairs Office (PDAO).

Established in 2012, the office is located on the ground floor of the city hall. It occupies what used to be a storage room for chairs and other office supplies.

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The office is composed of nine PWD employees and a sign language interpreter who is also a parent of a child who is deaf.

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Focal person Arnold de Guzman, who has an orthopedic disability, said it is important that PWDs are given employment opportunities in spearheading the sector’s concerns.

Social workers, he said, may have the tendency to view PWDs as mere “clients.”

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The Quezon City PDAO has an annual budget of P6 to 10 million and caters to around 16,000 registered PWDs. It provides PWDS medical assistance, assistive devices and even employment opportunities.

Despite having a dedicated PDAO, accessibility remains a major concern for Quezon City-based PWDs, de Guzman says.

Despite laws on accessibility, the community still lacks awareness, he said. Students who use wheelchairs are forced to take the streets because vehicles occupy ramps and sidewalks most of the time.

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While some establishments have accessibility features, they do not comply with standards. Ramps, for instance, are very steep.

Out of 142 Quezon City barangays, 74 already have PWD focal persons or PDAO coordinators.

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In order to encourage participation, the PDAO recognizes communities and barangays with good practices and initiatives in raising disability awareness.

The office envisions a “PWD-friendly Quezon City” by 2018.

PDAOs in Metro Manila: Valenzuela

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Text and photos by MARIA FEONA IMPERIAL

THERE is still no Persons with Disability Affairs Office (PDAO) in Valenzuela City but programs and services for PWDs extend beyond what an actual office could provide.

Ma. Kristina Ramos, focal person for PWD affairs, said there is already an ordinance for the creation of a PDAO but the law has yet to be implemented.

However, the quality of the programs and services for PWDs matters more than an office, Ramos insists. In the meantime, PWD concerns are accommodated mainly in the city social welfare department office and the Disabled Persons Affairs Committee (DPAC).

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Established in 1996, the DPAC is composed of the heads of different local government units, and receives an annual budget of P500,000 to P1,000,000 directly from the local government.

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Ramos says they have different sources of funding. For instance, funds for medicines are drawn from the city’s Emergency Welfare Program, while therapy needs fall under the annual PWD budget.

Valenzuela has clinics for physical, occupational and speech therapy, Ramos said.

A total of 9,344 PWDs are registered and have PWD IDs but according to the survey done by the city government, there are 20,000.

Beyond the basic provision of assistive devices, the CSWD also conducts home visitation services that cover the educational, health and employment needs of PWDs who cannot visit their office.

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Ramos said the priority is for PWDs to have “easy access” for these services.

The CSWD office is located at the ground floor of the Valenzuela City Hall, where there are ramps in every entrance and accessible toilets in all floors.

The PWD affairs unit, Ramos said, is focused on conducting a survey among PWDs to assess their needs, concerns and strengths, among others. This is key to having a comprehensive program for PWDs, she pointed out.

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For the longest time, she added, surveys paid little attention to the needs of PWDs. She hopes that through this one, they would be able to come up with credible data.

PDAOs in Metro Manila: Marikina

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Text and photos by VERLIE Q. RETULIN

ON Aug. 1, 2014, Marikina’s PDAO was established in accordance with the PWD Code of Marikina. It is being manned by three personnel, all with orthopedic disability.

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It is temporarily housed inside the City Social Welfare and Development office, although promises were made to have their own office someday. “Ang importante, nagsisimula kami. May isang table, may isang computer, isang typewriter — nag-uumpisa palang talaga (The important thing is that we’ve already started on something. We already have a table, a computer, a typewriter–we are just really starting) Gil Flores, one of the three personnel there, said.

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They are also waiting to gain access to their own budget. Meanwhile, the Mayor’s Office provides the money needed to finance their activities. Flores said they will organize and gather data on the number and profiles of PWDs in every barangay first.

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There are more than 2,600 PWDs in Marikina, based on the number of PWD IDs issued as of June 2015.

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PDAOs in Metro Manila: Pasay

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Text and photos by VERLIE Q. RETULIN

THE City’s Persons with Disabilities Office is located inside the Mayor’s Coordinating Office at the Cuneta Astrodome, and is under the supervision of Pasay Social Welfare Development Office. It has yet to have its own office space and its own budget.

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Kung may PDAO na po kami, may sarili na po kaming budget, makakahanap po kami ng sariling office. Ito po nakiki-office lang kami. Nakikisiksik lang kami diyan. Meron lang kaming table (Once we have our own PDAO, we can have own budget and we can set up our own office. Right now, we only share an office (with another local government agency). What we have is only a table),” Hilda Cristobal, Vice President of Pasay Federation of PWD, said.

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There are no PWDs in the office—not even its focal person, according to Cristobal.

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Pasay has 201 barangays, and Cristobal said there were efforts for each barangay to have their own PWD desks. As of January 2015, there are 2,071 PWDs in Pasay.

PDAOs in Metro Manila: Parañaque

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Text and photos by VERLIE Q. RETULIN

PARAÑAQUE’S PDAO was established on July 1, 2014. However, an ordinance is still pending at the Sangguniang Panlungsod for its appropriation.

Currently, the office is composed of eight employees, half of whom are PWDs including its head, Arnold Castillo, who has orthopedic disability. Castillo arrives in the office in a wheelchair and tables have to be moved each time so he can be transferred from his wheelchair to his desk.

Paranaque has 3,500 PWDs, based on the data from the City Social Welfare Development Office.

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PDAOs in Metro Manila: Muntinlupa

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Text and photos by VERLIE Q. RETULIN

MUNTINLUPA’S Persons with Disability (PWD) Division is located at the far end of the Social Services Department (SSD). Established in May 2014, the office takes care of PWD-related issues and concerns, including the issuance of PWD IDs.

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An ordinance giving the division access to its own budget is pending with the Sangguniang Panlungsod and is expected to be approved next year. The office, however, will continue to operate inside the SSD.  “Hindi hiwalay, nandito pa rin kami. Pero iyong funds, meron nang naka-secure (We are going to stay in the same office. The funds, however, will be secured),” said Caridad Molo, focal person for PWDs. She has an orthopedic disability.

Muntinlupa has 4,506 PWDs as of July 2015.

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PDAOs in Metro Manila: Las Piñas

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Text and photos by VERLIE Q. RETULIN

THE resolution mandating the creation of a PDAO in Las Pinas is still pending approval at the city council.

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Jeremiah Dicen, Social Welfare Officer III of the City Social Welfare and Development Office (CSWDO), hopes that the resolution will be signed soon.

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Malaking tulong talaga ‘pag mayroong PDAO. Iyong lahat ng mga concerns and issues patungkol sa mga PWDs doon na matutugunan (It will be very helpful once the PDAO is  established. It will address all PWD-related issues and concerns),” she said.

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In the meantime, the CSWDO handles and supervises all programs and services concerning PWDs and senior citizens, including the issuance of PWD IDs. Dicen said the budget for their activities come from the city government.

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Las Pinas is composed of two districts and 20 barangays. Dicen said each barangay has a PWD desk. As of July 2015, there were approximately 3,000 PWDs residing in the city, based on the number of IDs issued and the results of a data profiling conducted in every barangay earlier this year.

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PDAOs in Metro Manila: Manila

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Text and photos by YVETTE S. MORALES

THE City’s PDAO was established five years ago but it has been running without a head.

It is supposed to be under the Office of the Mayor, just like the Office for Senior Citizens’ Affairs.

Manila’s PDAO is composed of seven people, all of whom are PWDs except program-in-charge Rosemarie Orpilla

Manila’s PDAO is composed of seven people, all of whom are PWDs except program-in-charge Rosemarie Orpilla.

However, it remains under the City Social Welfare Department under the supervision of Rosemarie Orpilla, PWD program-in-charge.

The PDAO is easily accessible as the entrance has a ramp and the office is the nearest to the city hall compound’s entrance

The PDAO is easily accessible as the entrance has a ramp and the office is the nearest to the city hall compound’s entrance.

She said it is the Mayor’s prerogative to assign a PDAO head. When asked to expound, she refused to comment on the matter. “You better ask the mayor. We cannot dictate the mayor’s decision about that,” Orpilla said.

There are around 13,600 PWDs in Manila.

The city’s programs for PWDs include skills training in TESDA-accredited Manila Manpower Development Center, financial assistance to students and livelihood assistance and free hospital services in city-owned hospitals through an “orange card” issued by district offices to indigent people, solo parents and PWDs which started in 2013 when Manila Mayor Joseph Estrada assumed office.

The nearest comfort room to the PDAO is five steps high, with narrow passageway and no accessible cubicle.

The nearest comfort room to the PDAO is five steps high, with narrow passageway and no accessible cubicle.

PDAOs in Metro Manila: Mandaluyong

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Text and photos by YVETTE S. MORALES

ELEVEN years before the Magna Carta for Persons with Disability was amended through RA 10070, the Mandaluyong Persons with Disability Affairs Division was established through a city ordinance by then Mayor Benjamin Abalos, Sr.

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Currently headed by Wennah Marquez, the city’s Persons with Disability Affairs Division (PDAD) caters to more than 2,650 persons with disabilities.
One of the local government’s projects, Project TEACH or therapy, education, assimilation for children with handicap, is a multi-disciplinary committee composed of people from the education, health and the PDAD which focuses on children with disabilities in less-privileged areas.

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City Ordinance Mandaluyong PDAO-1

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QC café trains, employs persons with developmental disabilities

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  • Ysabella Canoy, owner of Puzzle Café teaches Clariz and Jill, 23 and 24 respectively, how to operate the waffle maker.
  • Canoy is a former pre-school teacher.
  • Redj, a person with a developmental disability, learns how to bake cookies.
  • Learning how to bake cookies is part of the café’s Christmas activity.
  • Cornell Saranggaya, 27, has been a trainee at Puzzle Café since it opened last year.
  • Canoy entertains the questions of an applicant who wants to volunteer at the café.
  • Canoy teaches trainees how to bake cookies, as a Christmas activity.
  • Trainees raise their hands as Canoy, owner of Puzle Café, teaches them how to bake cookies.
  • Trainees knead dough during their training on how to bake cookies at Puzzle Café.
  • A trainee attends to a customer in Puzzle Café.
  • A trainee cleans the bar of the café, as Canoy comforts Redj, 32, who had become upset.
  • Every trainee is taught to clean up after himself, a skill that these individuals can replicate at home, says Canoy.

Text and photos by ALANAH TORRALBA

YSABELLA Canoy is busiest on Thursdays.

It’s the day of the week when she juggles managing her café and supervising trainee-employees.

She coaches one to take the order of a newly arrived customer, and then teaches a group to bake cookies.

Her method is a calm repetition of carefully crafted instructions: switch on the waffle maker, take the batter out of the refrigerator, wait for the light to turn green.

She uses index cards to better visualize these tasks, and then repeats her instructions until she is satisfied her trainees are ready for their hands-on practice.

Canoy is a former pre-school teacher.

Canoy is a former pre-school teacher.

One trainee consistently interrupts her, but Canoy, who used to be a pre-school teacher, remains unflustered.

“You need to have more patience here than in dealing with pre-school kids,” she says.

Her trainees have one thing in common. They all have developmental disabilities.

Puzzle Café, which Canoy and her siblings set up in Quezon City a year ago, aims to raise awareness on autism and train persons with developmental disabilities for employment.

The café began as a sort of personal project for them.

Planning for their future after the retirement of their father, they had to consider their brother Jose, who has autism.

“It was up to us to give him something to do for the rest of his life,” Canoy says, who herself initially wanted to take up further studies in child development.

At first, they planned to open a convenience store, but later decided that the socialization component of working in a restaurant could be good for Jose.

Puzzle Café was born.

Cornell Saranggaya, 27, has been a trainee at Puzzle Café since it opened last year.

Cornell Saranggaya, 27, has been a trainee at Puzzle Café since it opened last year.

The small neighborhood café has become a place for adults with developmental disabilities to be trained with skills that could make them employable.

“Puzzle Café is a middle ground, a stepping-stone for these individuals before employment,” Canoy says.

The lack of a simulation of a work environment in school, she adds, makes the entry into the work force an overwhelming experience for them.

“We are lucky because we get to experience [on-the-job training] in companies that allow us to adapt to the work force. It takes them more time to adjust,” she says.

Acknowledging the gap in their adaptive skills, Canoy says it is her goal to help individuals with developmental disabilities learn how to cope with the stress and challenges that come with being employed.

“Our country is not ready to hire them yet, although there are individuals [with disabilities] who are already employed. Some are chefs and some are graphic designers. They are starting to enter the work force but not without problems,” she says.

Her sentiment is reflective of the overall employment situation for persons with disabilities (PWDs) in the country.

Canoy entertains the questions of an applicant who wants to volunteer at the café.

Canoy entertains the questions of an applicant who wants to volunteer at the café.

Many companies, for example, hire PWDs only as part of their corporate social responsibility (CSR) programs.

Unfortunately, after the CSR programs are finished, few, if any are hired full-time. (See Companies told not to hire PWDs to boost image)

Canoy says that more than gaining skills for employment, her trainees at Puzzle Café are provided the opportunity to do something with their time and not be constricted to an idle stay at home.

“Growing up, we experienced how people saw individuals with autism. They were looked at with pity,” she says.

She observes that for many customers, dealing with persons with autism can be tricky.

The café thus strives to provide a space for people who want to have genuine conversations with these individuals, she adds.

Managing the café and training individuals with developmental disabilities can take a toll, Canoy acknowledges.

“When you’re here, you experience everything: the fatigue, the exasperation,” she says.

But she says it is worth it.

Her trainees still have a lot of learning to do, but she relishes in their small improvements. Just earlier, she says, one of the trainees learning how to use the waffle maker was able to read the text on the index cards.

“That was a huge development. What a revelation!”

A trainee cleans the bar of the café, as Canoy comforts Redj, 32, who had become upset.

A trainee cleans the bar of the café, as Canoy comforts Redj, 32, who had become upset.

PDAOs in Metro Manila: Pasig

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Text and photos by YVETTE S. MORALES

TO serve the 1,398 registered persons with disabilities (PWDs), the local government of Pasig decided to mobilize leaders in its barangays before establishing a Persons with Disabilities Affairs Office (PDAO).

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PWD focal person Sherryl Tutor said the city social welfare office wanted to first train PWD leaders who would later be helping in the operations of the PDAO.

Kailangan munang mag-identify ng PWD na may capacity (You need to identify capable PWDs first),” Tutor said, who has sat as focal person since 2011.

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So far, the office has mobilized 29 coordinators, who each receives a monthly honorarium of P3,000. There are also 151 PWD leaders who help the city in implementing its programs, such as leadership and sign language trainings and scholarship programs.

Angels Walk for Autism lauded as model for ASEAN

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By JAKE SORIANO

THE annual Angels Walk for Autism reached new heights Sunday.

A record crowd of 15,000 people, bigger than last year’s number, attended the event at the SM Mall of Asia Arena, and among them were around a hundred guests from the Association of Southeast Asian Nations (ASEAN) region and Japan.

ASP national president Magno-Veluz reiterates her call for an autism-OK Philippines, and ASEAN. Photo by JAKE SORIANO

ASP national president Magno-Veluz reiterates her call for an autism-OK Philippines, and ASEAN. Photo by JAKE SORIANO

“We have now crossed the borders of the Philippines,” beamed Mona Magno-Veluz, national president of Autism Society of the Philippines (ASP), the organization behind Angels Walk.

What began in 2007 as a small gathering to shine the light on autism is now a being lauded as a model for the rest of ASEAN.

“The advocacy for autism awareness and inclusion is truly commendable and really worth emulating in ASEAN,” said A.K.P Mochtan, Deputy Secretary General of ASEAN for Community and Corporate Affairs.

The Angels Walk was held less a month after the formal launch of the ASEAN community on the last day of 2015. ASEAN is composed of Brunei, Cambodia, Laos, Indonesia, Malaysia, Myanmar, the Philippines, Singapore, Thailand and Vietnam.

Mochtan has lauded it “the epitome of the ASEAN spirit” in line with the regional aims of belonging, narrowing development gaps, and inclusive development.

“I am indeed very much impressed. I am overwhelmed,” he said.

Akiie Ninomiya, executive director of the Asia-Pacific Development Center on Disability and father of a child with autism, called the event a “remarkable turning point” on collective autism advocacy in the region.

“ASEAN just started its integration formally, and opportunities must be available for each country and citizens, including persons with autism and their family members,” Ninomiya said.

“It is recognized that there is still a lack of laws, policies, programs and services to respond to the needs of persons with autism in the ASEAN region,” he said.

He called on members of the ASEAN Autism Network (AAN), of which ASP is part, to “go beyond its country boundaries, and work collectively within the ASEAN community.”

ASP chair emeritus Erlinda “Dang” Koe is set to take over as chair of the AAN, from Malai Abdullah of Brunei, who was also present in the Angels Walk.

In her speech, ASP national president Magno-Veluz reiterated the call she made last year for an “autism-OK” Philippines, and ASEAN, where the needs of persons with autism are adequately accommodated. (See Thousands don ‘angel wings’ for autism cause)

Mochtan, Angara, Magno-Veluz and Hans Sy of SM show their dance moves during the Angels Walk for Autism. Photo by JAKE SORIANO

Mochtan, Angara, Magno-Veluz and Hans Sy of SM show their dance moves during the Angels Walk for Autism. Photo by JAKE SORIANO

About one percent of the total global population has been identified with autism spectrum disorder.

This translates to some six million in ASEAN out of the more than 620 million people live in the region.

“Our advocacy is not only for the Philippines, but for the rest of ASEAN,” Magno-Veluz said.

“We are so happy that we have this community and we are able to share best practices. With that culture of sharing, we are able to learn from each other,” she said.

Recent developments in Philippine government programs and laws give the sector hope, she said.

“We’ve actually started having the conversations with PhilHealth (Philippine Health Insurance Corporation). They are now developing autism packages,” she said.

She also mentioned the exemption from the value-added tax (VAT) of persons with disabilities, which passed the bicameral committee of Congress last December, but is yet to be signed by president Benigno Aquino III. (See Bicam approves VAT exemption for PWDs)

She said one of the first things the ASP will do after the Angels Walk is to start actively calling for the signing of the bill into law.

Trabaho pa po [More work needs to be done] on the side of our stakeholders,” she said.

Senator Sonny Angara, one of the authors of the VAT exemption for PWDs bill, who also attended the Angels Walk, noted that family members of PWDs would also benefit.

“We have also included in the law relatives taking care of PWDs,” Angara said in Filipino. “They would receive help from the government through a deduction in their income tax.”

The bill, in addition to exemption from VAT for PWDs, also allows relatives taking care of them to claim a P25,000 deduction in their annual income tax.

Another law that would benefit PWDs, said Angara, is Republic Act 10699.

Signed last year, it would raise the incentives granted to national athletes, coaches and trainers who excel in international competitions.

“In this new law, athletes with disabilities have been included,” he said.

Special Olympics gold medalist Raymond Macasaet was honored during the event with the ASP Autism Angels Achievement Awards.

Angara, Magno-Veluz and Koe presented the award to Macasaet, and to fellow achievers Victor Francesco Cham, a visual artist; and singer Thara Marie Santiago.


Veteran PWD Power Lifter faces same problems amid new law

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  • Achelle “Jinky” Guion, 43, a veteran powerlifter, is photographed in front of trophies at a gym in Cubao, Quezon City.
  • Guion lifts weights during her weekly training for the Paralympics in Brazil this September.
  • Guion rolls her wheelchair in a residential area in Cubao, Quezon City.
  • Guion lifts her wheelchair into a cab.

Text and photos by ALANAH TORRALBA

ON Saturdays, Achelle “Jinky” Guion must negotiate her way through EDSA. A wheelchair user, she must pull her wheelchair to the sidewalk of the national highway and pray that a passing vehicle will not hit her. Then she must plead with a taxi driver to take her from a gym in Cubao, Quezon City to her home in Cainta, Rizal. Often, taxi drivers would refuse.

Guion has brought home awards for the country as a power lifter of the national PWD (persons with disabilities) team. She has competed in numerous local and international competitions and was part of the country’s largest delegation of PWD athletes at the Paralympic Games in 2012. (See PWD athletes largest Ph delegation to London Paralympics)

Despite a new law meant to encourage PWD athletes to excel in sports, many PWD athletes still encounter persistent problems from accessibility of transport to financial woes and lack of institutional support.

In November 2015, President Benigno Aquino signed into law Republic Act 10699, expanding the coverage and incentives for national athletes and coaches. The law, which now also covers PWD athletes, repeals the legislation passed in 2001.

The law, among others, provides for discounts in certain establishments for national athletes, priority in affordable housing loans, comprehensive social security and the use of living quarters and training centers maintained by the Philippine Sports Commission while preparing for international competitions.

Once a week, Guion goes to a gym in Cubao to train for the 2016 Paralympic Games in Rio de Janeiro in Brazil with her coach. She admits she has not been getting proper training as frequently as she should and makes do with what is available.

The veteran power lifter has yet to enjoy the benefits RA 10699 promises as she struggles to train regularly.

Guion, like many athletes, is not familiar with the law. She is aware that some incentives are given to athletes who win in international competitions but is surprised at the magnitude of the financial rewards.

A PWD athlete who wins a gold medal at the Youth Olympic Games or Paralympic Games will be given P5 million while a silver medalist will be given P2.5 million. A bronze medalist gets P1 million.

At the Asia Para Games and world-level competitions, a gold medalist will be given P500,000. Subsequent medalists will get half of that amount and so on.

Guion says it is difficult for her to train even in gyms near her home. Most local gyms in Cainta are not wheelchair accessible. “I will have to crawl up to the second floor of a gym. I will have no more energy left to train,” she adds.

Even the gym at the PhilSports Arena in Pasig, where most national athletes train, is located on a higher floor, Guion says.

The powerlifting team’s fate in the Paralympic Games, despite having already technically qualified in terms of points, is still up in the air. Due to a sudden change in rules by the International Paralympic Committee (IPC) that requires attendance in international meets, the team must compete at the 2016 IPC World Cup in Kuala Lumpur on February 24-28. The team will then ask for a wild card slot at the IPC, which still does not guarantee their participation.

Aside from the change in rules, Ramon Debuque, the power-lifting team’s coach, says the persistent problem of lack of funding still hounds the national athlete’s pursuit of medals.

It is difficult, for example, for a PWD athlete like Guion to be able to train regularly as she cannot afford to commute daily to Cubao, where Debuque’s gym is located.

Debuque also laments how athletes cannot follow diets geared towards maximizing their performance, which tend to be more expensive than what is widely available. Supplements, such as whey protein that aid in muscle development, are also too expensive for the athletes to purchase themselves.

The athletes must wait for the release of their allowances, which are typically given close to the dates of international competitions. In the meantime, athletes are forced to subsist on their meager wages or contributions from private citizens. Many of them cannot afford to become full-time athletes, an ideal situation that would allow them to focus on their rigid and exhausting training programs.

Guion spends almost P500 on a day’s fare. She used to commute to Cubao via a jeepney but had to stop due to the various times she was sideswiped by cars.

Guion spends almost P500 on a day’s fare. She used to commute to Cubao via a jeepney but had to stop due to the various times she was sideswiped by cars.

Debuque says it is difficult to aim for a gold medal with his team, given the limited time they are able to devote to training.

In 2012, the Philippine delegation to the Paralympic Games in London failed to bring home any medals in any of their events. Adeline Dumapong-Ancheta, another veteran power lifter, finished sixth in her event. (See No medals for Ph Paralympians)

Despite the setbacks, Guion is still excited for the Paralympic Games in September. She says that the sport has taken her to different parts of the globe that she had never imagined she could visit. Her siblings, she says, are amazed that she has been able to travel extensively.

“I also do this for my friends at the Tahanan ng Walang Hagdanan. I want to encourage them to play sports because it can be empowering,” she says.

Voters with disabilities in the 2016 Elections

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OF the 54 million Filipinos registered to vote in the upcoming presidential elections, 318,013 have disabilities.

The interactive map below shows the 10 provinces in the Philippines with the most number of registered voters with disabilities.

Don’t forget these ill persons

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PWDs special registration. Photo by Mario Ignacio IV for VERA Files.

PWDs special registration. Photo by Mario Ignacio IV for VERA Files.

BY ELLEN T. TORDESILLAS

THE law signed by President Aquino March 23 exempting persons with disabilities from the value-added tax is a whiff of balm in the current toxic (Philippines as money laundering center of the $81 million bank heist and the negative vibes of the election campaign) atmosphere.

The law, Republic Act No. 10754, which amends Republic Act No. 7277, otherwise known as the “Magna Carta for Persons with Disability”, exempts PWDs from the 12 percent VAT, on top of the 20 percent discount they are currently entitled to under the Magna Carta.

The discount applies to transportation fees, medical and laboratory charges, cost of medicines, admission fees in cinemas and other leisure and amusement places, and funeral and burial services.

The House bill was sponsored by Leyte Rep. Martin Romualdez in the House of Representatives and in the Senate, by Sen. Sonny Angara.

The PWDs now enjoy the same privileges as senior citizens, an attribute of a compassionate society.

Another feature of R.A. 10754 is the incentives to PWD caregivers which was introduced by Sen. Ralph Recto, co-sponsor of the bill at the Senate.

In a press statement Recto said, “A child, parent, sibling, or a relative of up to fourth degree of consanguinity or affinity who is caring for or living with a PWD, who in turn is chiefly dependent on the relative and incapable of self-support, can claim additional tax exemption.”

“Kung kasama ang fourth civil degree of affinity, kasama dyan ang parent-in-law o biyenan ng taxpayer, hanggang first cousin-in-law,” he further explained.

The tax deduction of P25, 000 annually is the same as what is currently claimed by a parent of a child not over the age of 21.

“This is certainly not enough but this is significant because it breaks the longstanding embargo that carrying for a PWD cannot be claimed as a tax deduction,” Recto said.

Recto clarified though that this privilege cannot be enjoyed for the tax-filing deadline on April 15, as income tax returns will only cover income derived during the past year.

Recto urged the government particularly Social Services Dinky Soliman to immediately convene the committee that will draft the Implementing Rules and Regulations. “I hope this IRR will not move on crutches. Sana mabilis. Any delay in effect freezes the benefits,” he said.

A PWD-related issue that remains to be clarified is the automatic inclusion of persons suffering from chronic diseases in the PWD list.

An earlier article by Patrick Pascual for VERA Files underscored the problems encountered by persons suffering from a chronic disease but do not look physically ill. Many of them are denied discounts by drugstores and other establishments.

Lupus does not prevent them from enjoying life. 2015 Summer Outing. Photo courtesy of Marilyn Robles.

Lupus does not prevent them from enjoying life. 2015 Summer Outing. Photo courtesy of Marilyn Robles.

Republic Act 7277, the Magna Carta for Disabled Persons defines Disabled Persons as those “suffering from restriction or different abilities as a result of a mental, physical, or sensory impairment, to perform an activity in the manner or within the range considered normal for a human being.”

R.A. 7277 was amended by Republic ACT 9422 granting additional privileges and incentive to with PWDs.

It states that “Identification Cards shall be issued to any bonafide PWD with permanent disabilities due to any one or more of the following conditions: psychosocial, chronic illness, learning, mental, visual, and orthopedic, speech and hearing conditions.”

Chronic means a condition or disease that is persistent or otherwise long-lasting in its effects. HIV is one example of chronic illness which also includes asthma, diabetes, cancer lupus, and many more.

Many persons who are ill with cancer o lupus do not manifest physical or mental impairment and there are offices of DSWDs that refuse to issue them PWD IDs. Some agree to fall under   “mental” or “psychosocial” conditions just to be able to get PWD IDs.

That issue should be resolved with clarity but meanwhile, as Recto said, the additional tax   exemption to PWDs and incentives to PWD caregivers should be implemented immediately.

SPED teachers in Northern Samar struggle with disasters, lack of support

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  • A child walks past damaged classrooms at the Catarman SPED Center in Catarman, Northern Samar.
  • Mildred Horca teaches her class of deaf students despite a damaged ceiling in the background.
  • Mildred Horca teaches her class of deaf students at the Catarman SPED Center in Catarman, Northern Samar.
  • A SPED student listens to a learning device designed for children with disabilities.
  • A student with disabilities writes his name on the blackboard.
  • Frizianne Baylon, a teacher who has taught at the SPED program for three years, teaches her class of children with intellectual disabilities.

Text and photos by ALANAH TORRALBA

CATARMAN, Northern Samar — Classes are held in rooms without roofs, and when it rains, the rooms are swamped with floodwater.

This lone Special Education Center (SPED) in Northern Samar sustained heavy damage from Typhoon Nona (International Name: Melor) last year. Some 1,200 classrooms were destroyed, costing an estimated P689 million.

Located in the capital Catarman, which is frequently on the path of typhoons, this school for students with disabilities struggles to make do with improvised fixes.

One teacher says she usually has to cancel classes the day after when it rains, because mosquitoes are quick to infest the classroom.

The regional Department of Education (DepEd) has just recently started repairs on the roof. A damaged room is worrying, as the risks are far worse for students with disabilities.

Mildred Horca, a SPED teacher for 15 years, says her deaf students would not be able to notice the signs of a collapsing ceiling until it is too late.

Typhoon Nona also destroyed SPED workbooks and other learning materials, forcing teachers to get creative.

FrizianneBaylon, 27, a teacher for three years, says she and her co-teachers are forced to photocopy these materials since they cannot afford to buy one workbook for each student.

She says they have never received donations of books for SPED students.

Deep-rooted challenges like these continue to hound SPED teachers in the province, which ranks among the poorest in the country.

Mildred Horca teaches her class of deaf students at the Catarman SPED Center in Catarman, Northern Samar.

Mildred Horca teaches her class of deaf students at the Catarman SPED Center in Catarman, Northern Samar.

While aid from both government and foreign organizations have been pouring in for public school students, Josephine Cornico, the principal of the SPED Center, says the needs of children with disabilities seem to have been neglected.

The lack of training for teachers also remains a challenge.

Erlinda Aniban, a SPED teacher for 18 years, says that while the DepEd provides yearly seminars, not every SPED teacher is accommodated into the trainings.

At present, DepEd identifies only a handful of teachers from around the country to attend these.

“Sometimes, even non-SPED teachers get the training while those of us who do teach in SPED, do not even get chosen,” she says.

The SPED center in Catarman has four teachers, but only one has a Master’s degree in Special Education.

Frequent trainings would go a long way not just for the capital, but also for the rest of the province.

Pushing for inclusive education

To meet the needs of children with disabilities in places like Catarman, at least nine bills were filed during the 16th Congress to create a special education law.

House Bill 4558, a consolidation of SPED bills, aims to establish and provide funds for centers in all public school divisions.

A provision of the bill also requires that in addition to teachers, each SPED center should have a program director and an administrative committee composed of physical, occupational and speech therapists, as well as a developmental pediatrician or educational psychologist.

But this bill only made it as far as transmission to the Senate.

Had the bill been enacted into law, SPED centers, especially those in far-flung areas, could administer their admission process more accurately.

Aniban says the process of admitting students into the SPED program is a simple assessment and interview with the parents, which she admits can be unreliable without the presence of a child psychiatrist.

Potential students are made to take a written test to assess their learning proficiency while those who cannot write or read are diagnosed through their parents’ interviews.

Aniban says she hopes a child psychiatrist could visit the school so that students could be correctly diagnosed of their disabilities.

A child psychiatrist could also help children with disabilities cope with the devastation wrought by a calamity, like Typhoon Nona.

While all students share the same problems after a typhoon — such as lack of shelter, food and, clothing, natural disasters — such devastation can be especially difficult for children with disabilities.

Principal Cornico hopes that in the future, the SPED program can integrate lessons on how to cope with natural disasters into the curriculum. She says lessons on natural disasters are already included in Science classes but admits more need to be done.

“Whenever there are programs for the normal children, our [SPED] children are forgotten,” she says.

Duterte violates law prohibiting ridicule of PWDs

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Davao City Mayor and presidential candidate Rodrigo Duterte. File Photo by MARIO IGNACIO IV

Davao City Mayor and presidential candidate Rodrigo Duterte. File Photo by MARIO IGNACIO IV

By ELLEN T. TORDESILLAS

FOR the information of Davao City Mayor Rodrigo Duterte who laughed at Persons with Disabilities while regaling his supporters in Aklan last week, there’s a law that prohibits ridicule, vilification, both verbal and non-verbal, against PWDs which can make them lose their self- esteem.

Public ridicule is “making fun or contemptuous imitating or making mockery – in writing or in words, or in action” of PWDs because of their impairment.

The law is Republic Act 9422, an act amending the Magna Carta for Disabled Persons.

The law identifies two forms of vilifying PWDs: One, uttering slanderous and abusive statements against them. Two, an activity in public which incites hatred toward serious contempt for, or severe ridicule of PWDs.

Regaling his audience in Kalibo, Duterte performed: “Iyong isa doon, classmate ko pa. Eh na-stroke, paganoon-ganoon” as he mimicked the half-paralyzed movement of a stroke victim.

Showing no mercy, he said, “ Gusto ko sabihin, ‘Pakamatay ka na lang’.”

He also related a story complete with action about a half-paralyzed man who was still fond of women. “Iyong isa doon, 87 o 88, pagdating niya siguro maingay na, gaganon siya pilit siguro may spinal problem. Tinutulak pa, ganoon.Tapos, tumatakbo iyong mga babae, tinutulak iyong mukha. Tapos ibalik ng yaya.”

The crowd applauded his performance.

Many who have stroke victims relatives felt hurt by Duterte’s ridicule.

One of them is Bib Macasaet, wife of Butch Macasaet, publisher of Abante tabloid. Bib and Butch have a special child who has overcome his disability and is now helping other children with special needs.

Bib’s father-in-law, Malaya publisher Jake Macasaet, is recovering from a stroke.

“I take great offense at what Duterte said  because I have a son with special needs and my father-in-law just suffered a stroke November 2015 and is a wheelchair user,” she said.

“You are a mentally ill person, Duterte, “ Bib lambasted  Duterte.

“How dare you laugh and make fun of stroke patients who are immobile and helpless? My father-in-law is a stroke patient and I will not allow you, to say ‘pakamatay ka na lang’ because he can’t help himself. Who do you think you are to make a mockery of disabled people? “

Bib also took on the people who were laughing at Duterte’s  tasteless joke: “I take it that none of you have relatives with disabilities or stroke patients – or else you wouldn’t be laughing. ‪”

Bib asked the Filipino people to wake up and stand up to Duterte:” Philippines, we just can’t allow this person to go on degrading people, most especially the helpless ones. “

By the way, R.A 9422 states that any person who violates will be fined, for the first violation of not less than P50,000.00 but not exceeding  P100,000.00 or imprisonment of not less than six months but not more than two years, or both at the discretion of the court.

For any subsequent violation, a fine of not less than P100,000.00 but not exceeding Two P200,000.00 or imprisonment for not less than two years but not more than six years, or both at the discretion of the court.

But first, someone has to file a complaint.

***

Related event:

Getting it Right: Reporting on Disability in the Philippines will be launched on Wednesday, April 27, at 2:30 p.m. at Joy 1 and 2 Function Rooms, 5th Floor, Oakwood Premier, Joy – Nostalg Center, Ortigas Center, Pasig City.

Getting it Right is a project of the Fully Abled Nation, aimed to increase public awareness of the importance of PWDs’ right to suffrage and right to participate in democratic processes. It is carried out in the Philippines by The Asia Foundation with assistance from The Australian Aid.

Produced by VERA Files, Getting it Right is designed as reporting guidebook but it is also helpful to non-journalists on communicating about PWDs.

Anybody with the heart for PWD is invited.

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